Kyle Vose Sept...님의 프로필Kyle's Results사진블로그방명록기타 도구 도움말

Kyle's Results

My dream is to never be forgotten!!!

Kyle Vose Sept 22,1972-

직업
In order to understan please go to http://redcapcafe.spaces.live.com
사진(1/10)
다른 앨범(1)

Please see the pictures above.  The first two are in protest that the Canadian Government is cutting funding for HIV/AIDS.  Pick one up at your local AIDS Service Organization or write your MP   House of Commons   Ottawa, Ontario   K1A 0A6. NO POSTAGE NESSESSARY!  Send one to Stephen Harper, stephan Dion, and Jack Layton.

잠시만 기다려 주세요...
죄송합니다. 입력한 댓글이 너무 깁니다. 내용을 줄여 보세요.
입력한 내용이 없습니다. 다시 시도해 보세요.
죄송합니다. 지금은 댓글을 추가할 수 없습니다. 나중에 다시 시도해 보세요.
댓글을 추가하려면 부모님의 사용 허락이 필요합니다. 허용 요청
부모님이 댓글 기능을 해제한 상태입니다.
죄송합니다. 지금은 댓글을 삭제할 수 없습니다. 나중에 다시 시도해 보세요.
하루에 남길 수 있는 댓글의 최대 한도를 초과했습니다. 24시간 후에 다시 시도해 보세요.
회원님의 계정은 다른 사용자에게 스팸 메일을 보낼 수 있다고 여겨지므로 댓글 기능이 비활성화되어 있습니다. 이 설정에 문제가 있다고 생각되면 Windows Live 지원에 문의하시기 바랍니다.
댓글을 남기려면 아래 보안 검사를 완료해야 합니다.
보안 검사에 입력한 글자는 그림 또는 오디오에 있는 글자와 일치해야 합니다.
Kyle Vose Sept 22,1972-님이 남긴 글:

Exciting new everyone who wants to be involved, as I don’t know how to or can afford right now to have a web site because of all the responses to this study.  A PDHA has offered and created a space on his web. 

Want to be a member get you’re AIDS Service Organization or if you don’t have one ask your doctor is they can email redcapcafe@hotmail.com  with a message giving us your name and stating to add you as a member and when the stie is ready you will recieve an email.

 If this still does not work for you email me and I will meet you in person in the Toronto area only.

Kyle

PDHA

4월 9일
6월 10일

Poverty

The reality is that this HIV+ community centre is really not the answer.  The real answer is to get rid of the stigma around HIV and give our community our dignity back.  Then we take this HIV+ community centre and we use it as a model to revamp the community centre’s in all of our communities thus creating  a community centre that works for all of us that are wanting a better quality of life.  It is not going to come to you; you have to go to it.  But since we all have community’s centre’s’ why not make better use of them. 

 

However not all of the programs are going to fit in all of the community centre’s but we use the schools to address the issues of training for life skills.  We can use stores spaces for some parts like the used clothing store.

 

There mission statement and some of the principals would be written differently but other wise no real difference between the HIV+ community centre and the revamped community centre’s and we call them "Positive Community Involvement Centre" 

 

Mission Statement to provide our community a safe space free from stigma where we can share our skills and tools with our community in order that all of us can achieve the best quality of life while improving and connecting our greater communities.

 

 

Principle #1 Aim to achieve the dual outcomes of community mobilization:  View community mobilization as a capacity-building process that empowers communities with the skills to organize, assess, plan, act, monitor and evaluate together.

    

Principle #2 Encourage meaningful community participation:  This means that people affected by poverty have an active and influential say in the decisions that impact on their lives.  It is especially important that those most vulnerable to poverty – first nations, seniors, youth/children, working poor, OW, ODSP, WSIB, UI, homeless community, new immigrants, ex prisoners, people who are stigmatized (e.g. people living with HIV/AIDS, mental health and additions, sex workers,) - participate meaningfully.

 

Principle #3 Encourage meaningful community participation at every stage of the mobilization process:  This means those most affected having an active and influential say in how they organize themselves, assess their situation, plan a response, act, monitor and evaluate.

 

Principle #4 Work together:  Encourage all community members affected by poverty to work together to cope with it.  This means starting, assessing, planning, and acting, monitoring, evaluating and scaling up together.  If you are from an outside agency, you should try to form an equal partnership with community members, sharing roles and responsibilities fairly.

 

Principle #5 Build trust and social capital:  This means spending a lot of time on building mutual trust, respect and understanding both within communities and between communities, and any other organizations (all agencies,, all levels of Governments, and public health) taking part in the process.  Everyone who is participating needs to understand each other's strengths and weaknesses.  This will encourage sharing of skills and knowledge within and between communities and organizations.

 

Principle #6 Communities of practice:  Are groups of people who share a concern or a passion for something they do and learn how to do it better as they interact regularly.

 

Three characteristics are crucial to a community of practice:

 

·         The Domain: A community of practice is not merely a club of friends or a network of connections between people.  It has an identity defined by a shared domain of interest.  Membership therefore implies a commitment to the domain, and therefore a shared competence that distinguishes members from other people.  (You could belong to the same network as someone and never know it.)  The domain is not necessarily something recognized as “expertise” outside the community.

 

·         The Community:  In pursuing their interest in their domain, members engage in joint activities and discussions, help each other, and share information.  They build relationships that enable them to learn from each other.  A website in itself is not a community of practice.  Having the same job or the same title does not make for a community of practice unless members interact and learn together.

 

·         The practice:  A community of practice is not merely a community of interest—people who like certain kinds of movies, for instance.  Members of a community of practice are practitioners.  They develop a shared repertoire or resources: experiences, stories, tools, and ways of addressing recurring problems- in short a shared practice.  This takes time and sustained interaction.

It is the combination of these three elements that constitutes a community of practice.  And it is by developing these three elements in parallel that one cultivates such a community.

 

 

 Values We would aim at fulfilling the "GIPA" accord at its highest level.  

 

 The core values are of the GIPA accord is:

·         valuing human life

·         respecting the dignity of all people

·         respecting diversity and promoting the equality of all people without distinction of any kind, such as sex, race, colour, age, language, religion, political or other opinion, national or social origin, property, birth, physical or mental disability, health status (including HIV/AIDS), sexual orientation or civil political, social or other status

·         preventing and elimination human suffering

·         supporting community values that encourage respect for other and a willingness to work together to find solutions, in the spirit of compassion and mutual support, and

·         addressing social and economic inequities and fostering social justice 

For more information about the UNAIDS GIPA Accord http://www.unaids.org/en/PolicyAndPractice/GIPA/default.asp check out this website

 

4월 29일

Results of Red Cap Cafe

Results of Red Cap Cafe

Our project has really snowballed and from the feedback and conversations and PHAs sharing their experiences and personal stories, it is finally getting a goal, and from that a plan is coming together.  I know that as a PHA community when we know that this project is a PHA project created by PHAs for PHAs then how can it fail. 

It is going to be a way to get to know who really makes up our community and the tools that are needed to educate ourselves and others, so that we can finally be in control of our own lives. And many are going to say that because I am gay that this movement is a gay movement but we already have people from different communities within our community working together to make this happen. 

But if this is going to work than every single one of us PHA’s have to take part or this will never happen!

 

And are you going to accept the fact that we will have to keep on living with the stigma of being HIV+!

However when we die, since so many of us are now living longer because of the new medications we end up dying of cancer or heart attack.  When we die in most cases the recorded reason for our death is cancer, heart attack.  When then happens is that the government get a lower recording of HIV deaths and the funding stops. 

But the irony about this is that the disease is still spreading rampant throughout not just the gay community as it had 25 years ago but through each and every community that makes up the over 62,000 of PHA just in Canada alone. 

 

Where the Cafe Idea came from

I have been to a Leadership conference and it changed my life.  And one of the ways we got to know each other was by us telling our personal stories. So in order for my community to understand me and accept me then they must get to know me.  So here is my personal story Results of Red Cap Cafe.

 

My Personal Story

My name is Kyle Vose I was born in Toronto and come from a United Kingdom background.  I grew in Jane and Finch and many will say it must have been horrible.  I was the minority and yet it was the best years of my life, I learned so much from experiencing other cultures and as my mother always taught us that there is always something that we can learn from another’s culture and just because they are different than us, that does not make what they believe or how they live wrong.  We can always learn a new way of thinking or a new way of doing something.  Imagine learning an easier way to get something done.

When I was 22 my youngest son was born and when he was three months old I was diagnosed with type II B Hodgkin’s disease which is cancer of the immune system.  When my son was about 7 months I was told that the chemo was not working and that I had about 6 months to live.  I started taking a natural herb and the chemo and here I am fourteen years later with a very weak immune system.  Three days after my 30 birthday I was informed that I had been co-infected HIV and Hep B; I thought my life was over how I was going to survive this.  Three years later Bowen’s disease a form of skin cancer, three months later Thyroid and just last year three days after my 35 birthday a massive heart attack, I thought that what else could go wrong boy was I wrong Diabetes.    

I am still here and I work hard in my community and you can ask any of my many friends that I love to help them in any way I can.  I have held someone’s hand to give them strength, I have held someone who need cuddling, I have offered advice and listened to them rage after being discriminated against because of their status.  I share my wealth of knowledge and as a result tried to educate them so they can make better choices and not need me so much and they have become very self sufficient and independent.  Instead of doing something for then I taught them how to do it for themselves.  But if you don’t know who to ask and can’t afford to take classes how can we ever get out of the rut we are stuck in.

 

Hungry City Campaign

So I learned all I could from working on the hungry city campaign and soon realized that we did not reach the goal of 50,000 signatures but still got the attention of the government.  How by telling our personal stories to the media, to anyone who would listen and getting support from the agencies fighting for my rights.  I then realized getting to know the staff the only problem was that many of them had university education but no real life experience of the reasons that they were fighting for was not a personal issue but a job, we were at least lucky that their hearts were in it though.

I really learned to connect with your community because then your community would want to help and support you.  What community would turn on itself and destroy itself.  I went on the leadership retreat and got to meet such a small but wonderful group of my community we were all the same HIV+.  Some of us were black, some white, some gay, some parents, some old, some young but the one thing that we all were was that we were all HIV+ finally a community but only for the weekend.  The majority of us are still friend and connect and do things together and we help each other out and in reality have become closer than my own family.  I learned that if we are HIV+ than this is our family as we all share the same disease but we don’t know who they are.

Articles that I have been interviewed for:

http://www.thestar.com/article/257113

http://www.thestar.com/Article/416235

 

 

What I learned from the long term survivor

I can only thank God or the Universe that I did not get infected when HIV first arrived.  The horror stories of what people went through with the hospitals, funeral homes, and their own families. 

But I also learned how they were able to survive without the AID service Organizations and how they really got started.  They were built with the sweat and blood of the community that this disease was attacking first. They were in reality created by people meeting in living rooms and coffee shops, and within the gay community the collected money held fundraisers and got the ball rolling.

So I asked myself what is difference today why are we no closer and why have we not moved ahead since then. 

 

What I learned from my own private Cafe’s

I learned that if we can sit in groups where we sit in comfortable places. We can have real in-dept conversations and be able to bring up different subjects that affect our community.  We can get other’s opinions and personal stories and if we did not understand something we asked questions. Then another would tell maybe a similar story and give a different point of view or experience.  Between all of the conversations we all get a better understanding of the issue and see all sides of the problem and come up with an idea on how we would fix the problem, or a suggestion to fix the problem. 

The only problem is that is usually goes not further than here and nothing usually get done about the issue.  If you try to bring a group together in order to gets the conversation going there needs to be a comfortable feeling with the group.  Think about when you have a group of your friends over and talk about the news or a personal problem.  This is an example cafe!!

 

Problems that were discussed

Government funding

When we die it is mainly recorded as because of cancer or heart disease. But in reality it is because of the way this disease attacks our bodies and with the side effects of the medication we take, and that these issues help cause the cancer and heart attacks.  Therefore the medical society reports the death as cancer and not HIV and the funding for HIV gets cut according. 

And with the government taking funding from the HIV community and using that money to finding a vaccine to prevent HIV; which to me is a slap in my face as it sends a clear message that for those of us who are HIV+ to bad for you, you have made your bed now lie in it and to those who might get infected not to worry we are working on a way to protect you from them.

Would it not be less on the system to find a way to educate, and to slow the spread and find a cure so that we won’t be disabled any longer and can return to living our lives?

Imagine telling someone who has cancer that as there is no cure and they are not going to waste any more money on a cure.   Instead they are using the funds to help those who don’t even have cancer and might never be effected with cancer, on a cancer vaccine just in case.  So if you are positive than to bad, that’s your problem, but to those that are negative we are going to protect you from getting this disease, when protection and proper education is the answer.

The Federal Government is cutting HIV funding

We as PHA Leaders in our Communities, are working together to get the media involved, because the cuts will only mean that HIV education and the services provided by the ASO are going to be cut and you the public is going to suffer.

The more the public is aware of the issues then we can get the proper attention needed to support all of our communities in the fight against the spread of HIV! 

Contact your local newspaper and ask to print an article on the cut backs and the need for public awareness of the ever growing epidemic of the HIV disease as it is still climbing, and there is no need for HIV to be still spreading in this day and age (SO SPEAK UP AND Loud about HIV)
 
Check out this web site www.increaseaidsfunding.ca/ 

 

 

 

 

Ontario Disability Support Plan

The government says that there is a safety net in case we should ever need it but the truth is that this is really a spider’s net.  Once you are in it there is no escaping it.  I remember watching the show “Good Times”.  They were talking about this issue and Felona called it the “one step forward and two steps back rule” and it is true the government makes you take two steps back for every step forward we try to make.  I mean who would want to go and work, because when you go and get a job and make $100 the government takes a cutback of 50% than housing will take 30% of that you’re left over with only $20 so we would have worked two days for only $20.  I am sick not stupid!!

Then we have to look at the issues of how we can support our own communities when we don’t receive enough on ODSP to live on.  Most of us depend on food banks and free lunches in order to survive and many go with the basics of life in order to survive.  A microwave may not seem like a luxury but when you receive food for life (same as meals on wheels) at 4 pm and you can’t take your med’s until 6 pm.  Because of our health conditions we must eat our food properly or risk the chances of getting bacteria infection from eating unheated food. 

 

ODSP rates

ODSP Case Type  

Maximum Shelter Allowance      Maximum Amount Monthly

                                                                  

Single Disabled Person

        $444                               $999

Single Disabled Person + 1 Child  

        $698                              $1526

Single Disabled Person + 2 Child   

        $798                              $1758

Single Disabled Person + spouse

       $698                             $1518

Single Disabled Person + spouse +1 Child

       $758                             $1697

So if you don’t live in something right now that is below or equals the maximum shelter allowance you will need to be living in housing! 70,000 people have already applied for housing in just Toronto alone that means a waiting period of approximately 10 years if you were to apply today.

Groups that support a change in ODSP and OW

www.socialplanningtoronto.org/25in5/index.html

www.hungrycity.ca

www.odspaction.ca

 

Ontario Coalition Social Justice Assembly May 10
 
FROM POVERTY TO ECONOMIC SECURITY
A Forum to Reduce Poverty in Ontario
 
Saturday, May 10, from 10 a.m. to 4 p.m.
at USWA Hall, 25 Cecil St, Toronto
[south of College St., and 2 blocks west of subway stop at College &
University]
 
Agenda highlights (more info to follow):
 
•        Shine a light on poverty in the province
•        Recommend ways to reduce poverty and increase social justice
•        Learn about the Provincial Government's plans for poverty
reduction -- with Cheri DiNovo, MPP (Parkdale-High Park) and we have also
invited the Cabinet Committee on Poverty Reduction to send a
representative.
•        Mobilize for public input into the process
 
Open at no cost to all activists interested in social justice -- labour,
student, aboriginal, women, ethno-racial, and other equity-seeking groups
 

(I would like to sit down with the Minister in charge of ODSP and OW and discuss issues that affect these policies and our solutions to help fix these problems.)

 

Results of Red Cap Cafe

Housing

For those who do now know that to receive subsidized housing you will have to wait approximately 10 years to get placed into housing.  As the Provincial Government has cut back drastically the amount of housing it is building, and with most of the new buildings that are being built in the city being condominiums,  the wait will be longer not shorter as the need becomes higher unless something is done about this issue, not only for my community but yours as well.

Groups that support affordable housing:

The Future of Affordable Housing in Toronto

 

Have your say on Housing Opportunities Toronto: An Affordable Housing Framework –2008-2018, a proposed 10-year plan to create and maintain affordable housing.

 

PUBLIC CONSULTATION MEETINGS

 

Wednesday, May 14 – Scarborough Civic Centre

 6:30 to 9 p.m.

 

Wednesday, May 28 – North York Civic Centre

                  6:30 to 9 p.m.

 

 Wednesday, June 4 – Etobicoke Civic Centre

6:30 to 9 p.m.

 

 

Monday, June 16 – Affordable Housing Committee 

  Deputations – 1:30 p.m., City Hall, Committee Room 2

 

For more information: www.toronto.ca/affordablehousing

 

www.socialplanningtoronto.org/25in5/index.html

www.hungrycity.ca

And if you want to see what the housing situation is like view the report by CTV’s W-FIVE www.ctv.ca/servlet/ArticleNews/story/CTVNews/20080425/WFIVE_landlord_080426/20080426?hub=WFive

 

Courts system and the Stigma of being HIV+

We all have heard on the new about HIV+ people going to jail for being HIV+ but the public only hears one side of the story because of the stigma surrounding HIV we are afraid to speak up and demand our dignity and respect! 

 In reality HIV is not really any different than Cancer or Diabetes. Just as HIV is preventable so are Cancer and Diabetes in most cases, and no one places a negative stigma on them! And we need to sit down and look at the discussions case by case as there are some we all agree with and others that are just a slap in the face to our community.

 I agree if someone purposely goes and rapes or is asked, and fails to disclose there status, then they are in the wrong.  But if you smoke cigarettes and you get lung cancer did you not know the risks.  Read the cigarette box it clearly says smoking may cause cancer, how clearer the message must is and yet people still smoke!

 When are the courts going to realize that we as a society needs to place a great importance on the fact that we can not all be so naive or stupid.  Because of the media and the internet the public has so much information about this disease; and information about any subject and that it is out there and still spreading.  If they are taking risks with their own lives then they should own up when they are forced to face the consequences of their own actions.

Believe me if I go into Tim Horton’s and buy a tea I don’t need them to tell me that it is going to be hot, or I would have asked to have an ice tea.  What kind of example are we setting for our society?

   If we all know that there are risks and we are still taking the chance. Then really why it that the only the HIV+ person charged and not the person taking the risk.  If they fail to ask than they are taking a risk, and even if they don’t ask.  If someone puts their member into my person without asking permission or if I was HIV+, should he not be charged with reckless behaviour to? 

What about the people who are in reality positive and don’t know it because they won’t get tested.  Because they assume that if they don’t know and assume that they are negative and since they believe that they are negative, they don’t use protection and they are infecting or putting at risk everyone they have unprotected sex with. And because they don’t officially know their status no charges can be laid on them.

Do you have a complaint regarding treatment in the court process or being discriminated by the courts system for being HIV+ the link to their page on the process of filing a complaint is?

http://www.ontariocourts.on.ca/ojc/en/information.htm

See also at the end of this report the Canada and the Ontario human rights code

 

The medical profession

I can only thank God or the Universe that I did not get infected when HIV first arrived.  The horror stories of what people went through with the problems of going from no treatment, to countless studies, from treatment at the hospitals, funeral homes, and their own families.

There are countless studies stating this or that, what are we to believe!!! When they really don’t have any real answers surrounding HIV!

 If only you knew of the amount of medical test we have to endure, memory lost (I can have three cups of tea, going at the same time) chronic pain ( I am in so much pain and the first set of medications gave me a massive heart attack, and no I would never think about suing the company I knew of the risks) and the worse constant fatigue( I will have all this energy and then zap it gone and back to bed as if I had not slept in days, but then medications for my Thyroid give me insomnia, so when I want to sleep have to take sleeping pills.  If I don’t take the Thyroid then I will die, and I got these problems as a result from the radiation from Hodgkins’ Disease)  

At very least we have some very good and carrying professions out there but then there are those who when asked about a problem, give the excuse that it is because we are HIV+ and they feel that this will answer the patients concerns for health issues. When there could be a real and dangerous reason as to these medical issues.

I am not going to take it anymore and hope that out there you are tired of living with the stigma of HIV, because if you are putting all of your hopes into that they are going to find a cure for HIV think again. Just look at the cancer community or the diabetes community and you will soon realize that we are nowhere closer to a cure for these diseases and they have been around longer than HIV.

I know that there are places in our community which job they have taken on for caring for those close to there end. I have supported one by volunteering in their fundraisers.  I had met the founder of this place on a number of occasions, and I have the greatest respect for her and her organization with the work that they provide to our communities.

(I also would like to sit down with the Minister of Health and discuss ideas or solutions to problems within our health care system.  If I can’t or when I get a meeting with them I will publish solutions that were presented to us and ways of getting these issues dealt with.)

 

If we have issues with the care received by your medical care team you can lodge a complaint with:

The College of Physicians and Surgeons of Ontario

80 College Street,

Toronto, On

M5G 2E2.

Their web site is http://www.cpso.on.ca/default.htm

 

To get a list of doctors who have had complaints filed against them is

http://www.cpso.on.ca/Info_Public/Dis_sum/disc_sumtoc.htm

And to file a complaint go to

 http://www.cpso.on.ca/Info_Public/factcomp.htm

 

Euthanasia and Dying with Dignity

How is the greater community going to accept our deaths when they don’t know the real reasons why they are happen?   When we die it is mainly recorded due to cancer or heart disease but in reality because of the way this disease destroys our bodies, and with the side affects from the handful of medication we take, it gets reported as anything other than HIV.

Imagine going to someone’s house and finding them dead from taking bottles of sleeping pills, or slashing their wrist, or jumping from their balconies.

I personally believe that a person should have the right to end his or her own life.  I know this watching my friends and my community slowly wither away and when this person is just lying there with drool running down their faces and no one to clean it up.  I don’t agree that a person should end their lives just because they are HIV+; there is still a life after being diagnosed HIV+, my life is an example.

Bigger and exciting things have happened to me since I became positive and I realize now all of those things I would have missed out on!!

I know I would want my closest friend or family by my side and let me have my dignity and be in peace and not have to suffer anymore.  I would sit by someone’s side until the bitter end and give them their dignity if I believed that they were making the right decision or I acknowledge because of their situation to end their own personal life.  I would not however provided them with the pills or a blade or push them over any balcony.

If they want to do it then I would want to be planning it but I would just make sure that they are not laying there for days before anyone realizes there is something wrong. 

How many more of us are going to die or allow ourselves to slowly and painfully die when we stop taking our med’s.  I know that at least in my case with all the pills that I take it won’t be long for my body to respond and my death would come quickly.  This is what happens in our community every day!

But because of the laws we are afraid to get involved or be there for fear of persecution by the courts for just being there!

http://www.righttodie.ca

http://www.religioustolerance.org/euthanas.htm

http://www.religioustolerance.org/euthnl.htm

4월 8일

Red Cap Cafe results for our community

Stigma and the unknown

If you think about it in the beginning not even the medical experts did not realize how it was being spread. And in the beginning they did not really care but treated the sick as leapers.  Funeral homes would not accept the bodies of the dead in their spaces.

But in reality how much more must we suffer we have the disease, those that who are negative and we have let into our person lives really have a better understanding of what we suffer just ask them. 

But just like I could try to understand what is like to give birth to a new born from listening to women tell me their stories, I could never experience it for myself so I in reality can never truly understand there issue.  But if they were to be asked they will shed many tears talking about our trials and tribulations of living with HIV.

We are a community no different than that of the cancer community, or the diabetes community.   But because of the stigma surrounding HIV we are treated differently and don’t receive the support in the same way the other communities do.

Imagine going to someone’s house and finding them dead from taking bottles of sleeping pills, or slashing their wrist, or jumping from their balconies. The news report does not talk about why they really committed suicide but we all know and out of respect for them say nothing.

 

As a community what are we hoping to accomplish

What we are really hoping to create new ideas and strengths of our communities and that this is a project aimed at building not destroying. But we must be able build by first getting to know our very unique community as we are a community no different than that of the cancer community, or the diabetes community. 

But there is a big difference and that the difference is that our community comes with a stigma attached to it; and it is because of this stigma that our community can not publicly gather without the fear of being discriminated against.  We even have this discrimination within our own community.

I once was told by a long term survivor who had sat beside me and said I like your tattoo’s and from that we had a very nice conversation and he then said that he wanted to talk to me before this  but was afraid that I would not accept him for the way he felt that he looked. 

I really do not judge another about his appearance and saw nothing really wrong with his appearance.  But the truth society always teaches to be harsh and we end up judging ourselves too harshly. 

As my reward I have so gained so much knowledge and respect for the long term survivor because of the valuable knowledge that they hold.

 

 

Solutions to Help Our Community

 

Why do we need this cafe when we have the ASOs

That is when I realized that we don’t know who we are as a community.  The greater HIV+ community today is neither connected nor educated and they will never be because of the rules and regulation our agencies have created in order to protect our right of privacy.

Because of the issue of disclosure we can’t really acknowledge another PHA or introduce them as another PHA that they might not know that this person makes up our community.

So the idea of having members and these are going to be PHA members so the rule would be that since we are all member of the same community that the rule of discloser should be to  introduce another PHA as member will allow us to get to know our community and begin to grow as a community. 

A better term was offered instead of members we could call each other brother and sister as we are all family sharing the same virus.

Yet there are flaws in place that exposes us to public disclosure because of the rules within the ASO’s.

See Living & Serving ll: 10 years later

By the Ontario HIV Treatment Network

Available at your local ASO or online at www.ohtn.on.ca

  

 

What can we do with this information?

With the creation of the Positive Community Involvement centre these are the principals of how this is going to model the way for PHDA and the first step is to find our community and let them know where we are and how to find us.  The problem again in this is the stigma surrounding HIV+. Until the stigma ends this is not going to be easy and between the laws, media, and our own communities it is like pulling teeth.  No one wants to go forth and be the model.  http://redcapcafe.spaces.live.com

Then inspire a shared vision and believe me I had no hope of anything better for my life and really tried this out because I was bored and wanted to see what could happen.  At the very least I could meet my community or help one person not get infected with HIV or help someone who is infected with HIV and get them to the right help.

Then I am going to challenge the process I want the government of Canada, Ontario, and Aids service organization to respond to my study and I will work with them to help change what needs to be fixed not only for my community but others in similar situations.

Then I am already enabling others to Act I have taught someone to make their own HIV+ dating site.  I am offering classes to my community sharing my knowledge and skills. I have also gotten other people willing to translate for free this knowledge into other languages.

Encourage the heart well by the response it too late to stop this.  It is out of control and we who started it can’t even keep up.  We have hope for something better in our lives for the first time since we have been positive something positive to believe in.  I have others offering their services to help our own community.

 

What did I personally learn from this study about myself?

What did I learn from this study about myself that I believed that I was really willing to help my community and now I realize there was so much more that I needed to do in order to live my life according to my belief’s.

So I have offered to teach others what I know for example I showed someone to fulfill their dream from this listening to me talk about this project and they have already created their own HIV+ dating safe place and I know they will go beyond past their original dreams as long and they are willing to share with others we even talked about charging and his answer was I would rather give back to my community. 

I am going to teach another PHA free to sew, so that if necessary they can at least be able to sew to help them survive.  I am also offering to teach free of charge basic computer skills to two other PHA’s so that they will be able to access valuable information on the net.  I have also spoken to PHAs from different ethnic groups and shared this dream for not only them but how they can become leaders in their own communities in order to save their communities not only for HIV but anything that plagues their community like cancer.

And the truth is that I looked back over my notes to one of the very first handout that was given me as a lesson at the Leadership retreat.  Because my dream was only that those newly infected PHAs would have to sit and listen and hear their stories of the most valuable of our community the PHA Long Term Survivors and to listen to their stories.

I have also felt the hope, dreams and aspirations of my community to be able to live with dignity!!

I am also no longer a PHA or Person living with HIV or AIDS but a PHDA a Person Living with Dignity and HIV or AIDS.  I am also living with cancer, diabetes, heart disease, but before all my illness I am living with Dignity and no one has the right to take away my Dignity!!!

 

What can we do what rights do we have?

GIPA or greater involvement of people living with HIV AIDS

Speaking about the government they have signed onto an accord called the GIPA principal which stands for the Greater Involvement of People living with HIV or AIDS in their own lives.  Where is my representation who is speaking for me, where are they because I would like to know so that I can show them this study and the results and let others know how to contact them.

Yet with all the rules and regulations we are forced to live with and; I know that some of you are going to say well than go back to where you can from if you don’t like it.  Well where in reality can I go since I was born and raised right her in good old Canada? 

There are so many who do not know what the GIPA accord is so the link and I have gotten permission is http://www.unaids.org/en/PolicyAndPractice/GIPA/default.asp

Link to Canadian site regarding HIV and the GIPA principal

http://www.hc-sc.gc.ca/ahc-asc/minist/speeches-discours/2003_06_19_e.html

 

 

Canadian Human rights code

http://www.chrc-ccdp.ca/legislation_policies/human_rights_act-en.asp

What is discrimination according to the human rights code?

http://www.chrc-ccdp.ca/legislation_policies/human_rights_act-en.asp#What%20is%20discrimination

Complaint process

http://www.chrc-ccdp.ca/disputeresolution_reglementdifferends/default-en.asp

 

Ontario Human rights code

http://www.e-laws.gov.on.ca/html/Statutes/English/elaws_statutes_90h19_e.htm

 

What is discrimination according to the Ontario Human Rights Code?

http://www.e-laws.gov.on.ca/html/statutes/english/elaws_statutes_90h19_e.htm#BK12

 

Complaints process

http://www.ohrc.on.ca/en/commission/complaint_processing_guides

Conclusion

Conclusion

Our Communities Responsibility

I believe with this project we not can help slow the spread of this disease maybe not find a cure but at the very least we can live our lives with dignity and respect.

How can we achieve that goal until we connect our community with the goal to educate others with our stories and we get the general public to feel safe to ask us questions and we need to be able to answer them openly and honestly so that they may be can truly understand what it is like to be living with this disease and that as HIV+ community we would not want anyone else to have to suffer as we do!!!

And we need to get the tools and places in place.  If you see we are coming up with a plan that will help us help ourselves, and then you will hopefully find that we won’t be so dependent on you or anyone else we should accept help from our own community.

 

 

AIDS Service Organizations

Solutions that we came up with

·         Have phone connections to central location that can relay “safe cafe” locations

·         Have office space to be able to meet and explain “safe cafe” rules and regulations with-in ASOs

·         Have “safe spaces” a room outside of ASOs used to hold cafe groups

·         Require newly infected PHAs to meet with long term survivors PHAs to prepare the newly infected about issues that may be facing

·         Instead of social workers filling out forms have social workers show the PHA how to get the information

·         Classes provided such as computer courses,  leadership, life skills

·         Instead of just providing services like cut hair have volunteer train other PHAs to cut hair

·         Locations where cooking classes could be held

·         Access to vehicle where group shopping trips could be made available everyone chips in for gas (many PHAs receive meals on wheels and if could go shopping would rather cook for themselves

·         ASOs have separate locations one for offices for intake and another where the services are being held such as computer classes

·         Create kitchens where we can provide our own lunches at a reasonable cost to provided safe places and meals for our community ( can train PHAs cooking classes)

·         Have second hand stores where we can have volunteers working shifts and money goes back into the community

·          Have support groups traveling to house bound PHAs and paying visits to provide care and access the needs of our community

 

Government

These are only a small part of the solutions these cafe’s have come up with and how we can work together with them to help our community become self-sufficient, but there are  real issues are with the problems that plague our community.  They will need governments to address these issues, and we are willing to sit and hold cafes and report on solutions that as a community we have come up with.  If we could have a representation PDHA and there job would be to ask the cafes when the government needs information and then will bring back the information gathered and will sit and  discuss the issues that need to be worked on with and not against the government or any other organization.

 

HIV Public AD

 “We are all going to get it unless you protect it and don’t get educated. It will be your own fault, are you willing to face the consequences or your own actions!”

 

PHA Community Message

I am doing it for my community and those within my community because I know them best, and I will stand up beside anyone from our community and help strengthen your community because in the end, we are of the same one human community, on this tiny planet called earth!!!

 

A PDHA (Person living with Dignity and HIV/AIDS) trying to educate the human community or it will be the end of all of us!!!